This page is meant for anyone who’s looking for information/helpful resources regarding living with hypermobility. Living with symptomatic hypermobility can be a long journey, and I hope this page makes your journey just a little more easeful.
Please note:
1) Any educational resources on specific conditions will contain external links to resources by medical professionals in this field, and will not be information generated by myself. It is important to get your information from professionals who are appropriately trained and qualified to talk about these complex conditions.
2) Nothing here is a substitute for medical advice. This page is merely to provide easier links to helpful resources, so you can find the help you are seeking from the appropriate medical specialties / professionals. It should not be used to make decisions with regards to your diagnosis or treatment, without consulting your doctor.
WORK IN PROGRESS….
If you have any queries, book a FREE discovery call with me to find out more! Happy to chat, train safe and be well!
Pink boxes = Self-Help Resources (These are created by me, and any references used will be cited. These are generic in nature, and are meant for educational purposes, or to assist your own self-care. It is not meant to substitute medical advice. If in doubt, always consult your own care team)
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Green boxes = General educational information from healthcare/allied health professionals.
Emily Rich (Occupational Therapist): POTS and Hypermobility related educational content + daily activity adaptive suggestions
Instagram: @emilyrichot
Corinne McLees (Occupational Therapist): Hand coach & OT
Instagram: @hand_coach_corinne
Hypermobiity & Co. Resource Page
Instagram: @thehypermobilechiro
Movement therapist specialising in hypermobility, Ehlers Danlos Syndrome, and chronic pain.
Instagram: @jeannie_di
App: The Zebra Club (subscription based app)
.....still buffering.....yes I mean my brain.....
Newsletter subscription: Educational information on EDS
Instagram: @cortdoesscience
Podcast: Hosted by EDS expert, Dr. Linda Bluestein, MD.
Topics explored are relevant to anyone experiencing symptomatic joint hypermobility- "From insightful discussions with specialists boasting diverse expertise to practical tips for optimizing your hypermobile health, we're here to empower you on your journey to wellness."
It is streamable on multiple platforms, including Spotify and Apple music.
Instagram: @bendy_bodies
Physiotherapist & Hypermobility Health Coach: Supportive information for those with EDS/HSD
Instagram: @hypermobilityhealthcoach
App recommendations:Â
There is a free version on the app store, and it can be an useful app for pacing.
It can potentially be useful for symptom tracking too, but if more complex symptom tracking is your goal, Guava instead may be a better fit for you.
There is also as well as a paid version and device if you want more insight.
(Note: I am not affiliated with them in any way)
This is an app on the app store, with both free and paid versions. This app is great for more detailed flare/symptom tracking.
Pink boxes = Directories
Green boxes = Individual Providers / Specific Clinics
[Some of these providers/clinics may provide telehealth even if it is not stated here. Do check by searching them up.]
Healthcare Professionals Directory
(international)
"Find a Doctor With Experience in Autonomic Disorders"
(international)
A list of teachers who successfully completed the Fundamentals of the Integral Movement Method taught by Jeannie Di Bon in association with The Ehlers Danlos Society.
Board-certified anesthesiologist, integrative pain medicine physician, M.D.
(She has developed EduCoaching to provide guidance to those residing outside her geographic practice regions.)
For more information: visit her website at www.hypermobilitymd.com
Location: USA
Message me directly if you are looking for providers to refer to for specific areas (I am not able to put everyone publicly here due to consent seeking limitations).
Location: Singapore, London, Australia
This is just a list of things I’ve personally found helpful along the way, from one zebra to another!
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Colour code:
Pink = International / UKÂ
Green = Singapore
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[Note: It is not a substitute for medical advice, nor an absolute recommendation. If you are unsure if a particular item may be useful for you, please discuss it with your own care team! There’s never blanket advice for hypermobile bodies.
Also, supplements will NOT be included here, as that is a conversation to have with your own healthcare team.]
There's are multiple lists of products which are catergorised based on the issues they are for: eg.
- heat intolerance
- hand support & pain relief
- noise sensitivity
- strengthening/exercise props
etc.
Most are items I have personally tried before. Sometimes when they exact item I used is no longer available, I would include a substitute item from another brand, which offers the same item type/design.
(Please note: As an Amazon Associate I earn from qualifying purchases.)
These are perfect for those with noise sensitivity, or get overstimulated easily. There are a range of options to choose from, depending on how much noise reduction you want.
I personally feel most comfortable with some background noise- so I use the Engage earplugs. It dulls down background sounds, but still allows you to hear direct conversations. I personally can hear announcements att the airport too haha, so its perfect to me.
Find one that works for you using the link below, and get 15% off your first purchase via the link below 🙂
If the discount does not automatically apply, use discount code: LCCW79J6Q7
For hand pain/instability:
This has been an absolute gamechanger- with these plug tugs, I can pull the plug out easily with just one hand now (whereas it would normally take both hands + a lot of force).
I personally use these around my entire room.
(Please note: As an Amazon Associate I earn from qualifying purchases.)
For heat intolerance / management:
I love this particular one from the UK because it much friendlier for unstable hands/wrists! You just need to fold the ice pack down, and the bag inside will burst easily (this is how you "activate" it to make it cold).
Most other brands will need you to hit the ice pack with a significant amount of force to "activate it".
(Please note: As an Amazon Associate I earn from qualifying purchases.)
Its supportive but still allows you full range of motion. I personally find it really helpful to prevent a flare from escalating 🙂
This brace allows for full functional range of motion, even in handstands! I personally use it for handstands to allow me to train productively during flares, as I struggle with carpal instability in my wrist.
Click the button below for the link to my Shoppee recommendations 🙂
Categories of items:
1) Heat Intolerance
2) Activewear
- I practically live in Activewear to deal with the heat, so I've just linked the ones that I get from Shoppee!
3) Exercise props
4) Clawclip Obsession
- those of you who know me would see me ALWAYS with clawclips. So for. clawclip lovers like me, I've included some which are kinder on the hands (because some need a lot of effort to open the clip)
[Below contains a Shoppee affiliate link, which I earn commission on for qualifying purchases. ]
I've consolidated some product recommendations on Singapore Amazon, which have been useful for living with hypermobility.
They have been categorised into themes:
- heat intolerence
- strengthening props
etc.
As Amazon is not the main platform used in SIngapore, some of my recommendations are on shoppee too. (Box above)
These product recommendations are based on my personal experience, and is not an absolute.
(Please note: As an Amazon Associate I earn from qualifying purchases.)
This is my ABSOLUTE personal favourite brand for aloe vera gels, no brand has come close to replacing it.
[Below contains a Shoppee affiliate link, which I earn commission on for qualifying purchases. Please feel free to search the product up instead especially if you don't use Shoppee/don't live in Singapore.]
For heat intolerance / management:
I've tried a variety of different instant ice pack brands, and this particular one from daiso seems to last the longest (in terms of how long it stays cold).
[If you are from the UK, checkout my UK Amazon Storefront instead- there's an alternative brand linked for this product.]
For heat intolerance / management:
Brand: Suu Balm
Item: Rapid Itch Relief Moisturiser
It is fragrance free, and is made for sensitive skin & eczema-prone skin. Great for heat related rash etc.
NOTE: If you have sensitivities, please check what this product contains! This has menthol in it, which some can be sensitive to.
[Below contains a Shoppee affiliate link, which I earn commission on for qualifying purchases. Please feel free to search the product up instead especially if you don't use Shoppee/don't live in Singapore.]
For heat intolerance / management:
Brand: Biore
Item: Unscented cooling wet wipes
It leaves a cooling/minty sensation on your skin a short while after wiping over it. 
NOTE: If you have sensitivities, please check what this product contains! I think it has menthol in it, which I am aware a notable number of people can be sensitive to.
[Below contains a Shoppee affiliate link, which I earn commission on for qualifying purchases. Please feel free to search the product up instead especially if you don't use Shoppee/don't live in Singapore.]
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